Meeting 1: 09 March 2023

Growing Up in Ireland Bilateral Steering Group Meeting

09 March 2023 11:30 – 13:00

Portobello Room, CSO, Ardee Road, Rathmines

Agenda

1. Opening and adoption of agenda

2. Minutes of meeting of 08 December 2022

3. Governance document – for sign off

4. Work programme 2023

5. Cross-cohort matters

• Communications/events
• Legal/governance matters
• MoU update
• Confidentiality WG update

6. AOB

• Schedule of meetings for 2023

7. Close

Minutes

Attendees:

• Mr Richard McMahon, Central Statistics Office (Chair)
• Ms Gillian Roche, Central Statistics Office
• Mr Ger Doolan, Central Statistics Office
• Ms Fiona O’Riordan, Central Statistics Office
• Ms Bridget Hearne, Central Statistics Office
• Mr Daniel Watts, Central Statistics Office
• Mr David Maher, Central Statistics Office
• Ms Caroline Goodwin, Central Statistics Office (Secretariat)
• Ms Laura McGarrigle, Department of Children, Equality, Disability, Integration and Youth
• Dr Anna Visser, Department of Children, Equality, Disability, Integration and Youth
• Dr Clare Farrell, Department of Children, Equality, Disability, Integration and Youth
• Dr Aisling Murray, Department of Children, Equality, Disability, Integration and Youth
• Ms Nessa McKevitt, Department of Children, Equality, Disability, Integration and Youth

1. Opening and agenda

Mr McMahon opened the meeting. The agenda was adopted without amendment.

2. Minutes and matters arising

The minutes of the GUI Bilateral Steering Group on 08 December 2022 were taken as approved.

Mr McMahon noted that nested studies are still on the work programme but are not an immediate priority. Dr Farrell offered to re-circulate an existing nested study protocol previously agreed between CSO and the Dept .

Ms Hearne noted that the Cohort ’98 25-year-old questionnaire is being finalised. Ms Roche noted that the planned 20-year-old snapshot publication timeline is being reviewed to allow for the inclusion of administrative data analysis.

Ms O’Riordan noted that good progress had been made on sampling approach for Cohort ’24 in CSO, involving the Methodology division, the sampling expert in the Social Data Design team and the Administrative Data Centre. An update will be provided to the group in the coming weeks.

3. Governance document

Ms Roche gave an overview of Version 1 of the Governance Framework Document noting that there have been only minor changes to the draft presented to the SG in December. This is a living document and may evolve as the project progresses over the years.

Ms McGarrigle thanked everyone for the good work done on the document.

The Governance Framework Document version 1 was signed off with the view to keeping it as a living document.

4. Work Programme 2023

Dr Murray gave a presentation on GUI structures and the workplan for 2023 in DCEDIY.

Mr Doolan gave a presentation on the CSO 2023 divisional structures and work plan.

Dr Farrell welcomed the inclusion of GIS as an explicit element of the work programme, noting that this had previously been a gap in the data and asked if the focus will be on future data or can previously collected data be included in the scope of this work. Ms Roche advised the intention is to apply work back as well as forward, however CSO will prioritise the new data first.

Dr Visser gave a presentation on the new GUI partnership model including the updated MOU. Mr McMahon noted the importance of the collaborative nature between DCEDIY and CSO. Ms O’Riordan noted the importance of collaboration in obtaining quality data and commented on the time and resources needed for the design phase of the survey.

Ms McGarrigle thanked all the presenters and commented on the power of the new working model to deliver outputs in the future.

5. Cross-cohort matters

5a. Communications/events

Ms McKevitt gave an overview on communication/events noting the original GUI website, Instagram and Twitter have been taken over by the DCEDIY. She noted that co-ordinated communications strategies between the DCEDIY and CSO would be useful. The GUI conference is expected to take place in November 2023.

5b.i. Legal/governance - MoU update

Ms Roche noted that the data controllership language is finalised in the MoU which is expected to be signed off on in the coming weeks. Mr McMahon noted that a lot of actions from the previous meeting the last minutes will be closed when the MoU is signed off.

5b.ii. Legal/governance  Confidentiality WG update

Dr Farrell advised that the group had held a 2^nd meeting with two experts (from the Health Research Board and Children’s Ombudsman) in attendance on 01 February. A proposed way forward with a legislative solution is now envisaged which would involve a restriction on access until the participant reach 18 years of age. DCEDIY will prepare an outline of a proposal which will go to the DPC in the first instance.

Ms McGarrigle advised that Dr  Visser is transferring to DPER and thanked her for all the work she has done in the DCEDIY.

Mr McMahon agreed the transition was a great success and wished Dr Visser the best of luck in her new role.

6. AOB