Irish Disability Survey
The Irish Disability Survey is a voluntary survey, and collection will take place in 2028 (pilot between 2026 and 2027). In Irish law, it is carried out under Section 24 of the Statistics Act, 1993, which allows this Office to invite people to provide information on a voluntary basis.
The survey fulfils the need to obtain up to date data on disability prevalence as well as reliable data on disability impact, to inform public policies. As part of the survey, information is collected from participants about different areas of life. For example, their use of health services, education, transport and employment. Information on the constraints which impact participants daily lives, such as environmental or personal factors, are also collected to better understand societal barriers faced by disabled people.
Our results are only ever made available in aggregate form to the public and we make sure that it is impossible for individuals or businesses to be identified. Anonymised survey information may be provided to other government departments, approved organisations, and approved researchers for statistical purposes only.
All information supplied to the CSO is treated as strictly confidential. The Statistics Act 1993 sets stringent confidentiality standards. Information collected may be used only for statistical purposes and no details that might be related to an identifiable person or business undertaking may be divulged to any other government department or body. Personal data you provide will be held for a maximum period of ten years, subject to survey requirements.
Personal data will be collected by way of online or direct interviews. Data about the person may also be collected from a parent/guardian(s), carer, or personal assistant if a proxy interview is required.
The CSO uses administrative data to complement or replace survey data, to make its statistical operations more efficient or to create new insights or products. This enables the CSO to reduce response burden and costs imposed by surveys, and to improve data quality and timeliness. The use of administrative data is governed by strictly controlled procedures in line with the Statistics Act and the General Data Protection Regulation (GDPR). All data obtained by the CSO are used solely for statistical purposes and the results of the analysis will not in any way allow you or your family to be identified.
The CSO Data Matching Policy and a Register of Data Matching activities can be found here CSO Data Matching Policy.
Sources of variables being received by the CSO are outlined under categories of personal data above.
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Department of Social Protection |
Child Benefit Data; Central Record System – Client Details, Payment and Employment Details; Long- and Short-Term Social Welfare Payments |
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Higher Education Authority |
Higher Education (including Springboard) Course and Awards Data |
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Department of Education and Youth |
Primary Student Database Post Primary Student Database |
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Quality and Qualification Ireland |
QQI Course and Awards Data |
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Office of Revenue Commissioners |
Income Tax Forms 11/12 and PAYE Income Data |
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Local Authority HAP Shared Services Centre |
Housing Assistance Payments |
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Health Services Executive
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Drugs Payment Scheme Data Long Term Illness Scheme Data Primary Care Reimbursement Scheme |
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SOLAS |
Apprenticeship Course and Awards Data |
For further information on this survey, please contact:
Aoife O’Neill, Statistician, by:
Post: Skehard Road, Cork, T12 X00E
Telephone: 021 453 5085
E-mail: aoife.oneill@cso.ie
Under the General Data Protection Regulation, you have the following rights:
However, because your data is processed for statistical purposes these rights may be limited in accordance with Article 89 of the GDPR. This is due to the fact that the exercise of any of these rights may render impossible, or seriously impair, the achievement of the statistical processing and such restriction maybe necessary for the fulfillment of those purposes.
Under the General Data Protection Regulation, you have the right to access, rectification, erasure, and restriction of processing in relation to your personal data. However, because your data is processed for statistical purposes these rights may be limited in accordance with Article 89 of the GDPR. This is due to the fact that the exercise of any of these rights may render impossible, or seriously impair, the achievement of the statistical processing and such restriction maybe necessary for the fulfilment of those purposes.
You also have the right to lodge a complaint with the Data Protection Commission. It can be contacted by:
Post: Data Protection Commission, 6 Pembroke Row, Dublin 2, D02 X963, Ireland.
Online: DPC Online Portal
Central Statistics Office Data Protection Officer Contact Details:
Post: Skehard Road, Cork, T12 X00E
E-mail: dpo@cso.ie