Overall, 64 people attended the 4th HDLG meeting which was held remotely on Microsoft Teams on 18th November 2022. A full list of those in attendance can be found at the end of this document.
Muiris opened the meeting and welcomed members to this online Health Data Liaison Group meeting.
Peter presented an update on the health information bill relating to the background of the bill, why action is necessary, health information as a valuable strategic asset and why legislation is a necessary part of the solution.
Next steps are that they are currently preparing General Scheme (Heads of Bill), finalising consultations/policy forum event in December, Go to Cabinet with Memorandum for Government on General Scheme and Regulatory Impact Assessment, Formal Drafting then commenced by AGO and continued involvement on proposed EHDS Regulation.
Collette and Fionnola discussed the new NOCA data strategy and how NOCA will advance national clinical audit in a constantly changing healthcare system. The strategy was developed in collaboration with key stakeholder groups. The three strategic pillars set out in the strategy are National Clinical August Excellence, Audit Development and Promote National Clinical Audit.
* Paul Morrin welcomed Laura Flannelly to the Group and wished her the best in her new Senior Statistician role.
Nikita discussed the two phases of the HSPA Tool – Development of Conceptual Framework and Implementation of the Framework in the system. Also, insights were given into the platform development of the HSPA and the visualisation tool. Nikita gave a demo to the Group of what the indicators in version 1 will look like. Plans to release V1 Prototype to the public in early 2023.
Sanela introduced the current data being used in CSO health data analysis (COVID-19 health data including COVAX data; PCRS Drugs Payment scheme and General Medical Scheme data; Deaths and Births data) and how this all fits into the National Data Infrastructure (NDI). The potential of linked administrative data in health outcomes was discussed.
Sarah discussed the CSO’s upcoming 2023 PCRS publication. It will be a single PCRS Publication incorporating the four previous releases (Dental, Optical, Pharmacy and GP). It will include a chapter on the impact of COVID-19 from 2019-2021 and a summary and detailed insights for the four areas.
Steven talked about a proof-of-concept project using the 2016 Census of Population Analysis and linked administrative data to describe Regional Health Areas (RHAs). The themes for this analysis are Income, Employment and Welfare; Health / Disability; Education Housing. Results can be re-produced for the updated 2022 data once available.
Note: All slides have been circulated to Members of the Group upon request.
1. Organise next meeting for June 2023
Paul Morrin
Muiris O'Connor
Alan Cahill
Margaret Hynds O'Flanagan
Pamela Elliott
Breda Fallon
Éanna Ó Lochlainn
Sandra Nolan
Rachael Kelly
Richard Greene
Michael Courtney
Fiachra Bane
Niamh Crossan
Eoin Darcy
Darragh Turner
Sanela Smith
Brendan Walsh
John Dunne
Paul Kavanagh
Loretto Grogan
Sharon Kappala
Oonagh Ward
Steven Conroy
Howard Johnson
Terri Raftery
Dan Dowling
Siobhan O'Brien
David Stratton
Sarah Crilly
Declan Smyth
Derek McCormack
Laurann Matsumoto
Roger O'Sullivan
Bernadette Rock
Martina Curran
Cliona O'Donovan
Laura Flannelly
Barbara Foley
Fionnola Kelly
Pauline White
Nikita Ellul
Peter Foley
Lucie Heseltine
Collette Tully
Tiago McCarthy
Neasán Mac Giolla Bhríde
Fintan Stanley
Stephen McDonagh
Brid Moran
Sinead O’Hara
Elizabeth McCrohan
Ana Terres
Peter Lennon
Dr. Augustine Pereira
Darren Crowley
Norita Murphy
Marina Cronin
Vincent Kennedy
Sarah Craig
Niall Halliday
Janet O'Farrell
Augustine Pereira
Cliona McGarvey
Mai Mannix